Giving patients control over health information focus of CLEAR-Regenstrief collaboration
CLEAR is collaborating with Regenstrief Institute on a breakthrough approach to create middleware that extracts and normalizes data from diverse clinical organizations and exposes the individual data elements including their metadata, while incorporating patient preferences, to support searches through a sophisticated patient data display for the provider.
This effort will be supported by a suite of three key components that support the ethical and user acceptability of the query products: (1) the application of Fair Information Practice Principles; (2) the application of a human factors approach; (3) development of an ethics framework to guide the design of the user interface.
CLEAR director Eric M. Meslin and Principal Research Scientist Kelly Caine will be working with Regenstreif to develop approaches to implement both greater patient choice in information sharing and more precise query for clinicians in a "real world" health information exchange that has been operating in Indiana for over 15 years—the Indiana Network for Patient Care (INPC).
The collaboration is funded by a $772,150 grant from the Department of Health and Human Services.